UHURU

In making UHURU I have embarked on a deeply intimate and emotional journey into the lives of those affected by Parkinson's disease in Tanzania. This film is not just a story about a medical condition. It is a narrative of resilience, hope, and the relentless pursuit of dignity amidst daunting challenges. Parkinson's disease, often misunderstood and shrouded in stigma, presents unique hardships to those living with it, particularly in regions with limited healthcare resources. Tanzania faces significant obstacles in providing adequate medical care for conditions like Parkinson's. Through this film I aim to shed light on three critical aspects surrounding Parkinson’s in Africa: the difficulty of obtaining a diagnosis, the lack of medication to manage symptoms, and the stigmatisation that can often lead to persecution of those with the condition.

The healthcare infrastructure in Tanzania is strained, with a scarcity of specialised medical professionals and facilities equipped to handle neurological disorders. For a population of over 65million there are only 8 neurologists in the whole country. Patients have to travel great distances to access basic care (if they’re lucky enough to be able to afford it), and even then the quality of treatment can be lacking and regularly people are given an incorrect diagnosis. By showcasing the stories of patients and healthcare workers UHURU highlights the urgent need for systemic improvements and increased support for those battling Parkinson's disease.

Access to medication is a lifeline for Parkinson's patients to manage and reduce symptoms. Yet in Tanzania it is a luxury most cannot afford. The availability of essential drugs is sporadic and the high cost puts them out of reach for large portions of the population. The main medication for Parkinson’s globally, levodopa carbidopa, is not approved for use in Tanzania. This film captures the daily struggles of individuals, and through their experiences we see the critical impact of medication on quality of life and the heart-wrenching consequences when it is unavailable.

Perhaps the most insidious challenge faced by those with Parkinson's in Tanzania is the stigma attached to the disease. Cultural beliefs and misconceptions often lead to social isolation and discrimination, exacerbating the physical and emotional toll on patients. UHURU delves into the cultural contexts that fuel this stigma, while also celebrating the courage of individuals who defy these prejudices. Their stories are a testament to the human spirit and a call to action for greater empathy and understanding of those with disabilities.

As a director, my mission is to use the power of storytelling to illuminate the shadows cast by Parkinson's disease, revealing the hope and resilience that lie within. Driven by a desire to amplify the often silenced voices of those living with Parkinson's in Tanzania, it is my hope UHURU will serve as a catalyst for action. Inspiring a broader conversation about Parkinson's disease, not only in Tanzania, but around the world, and driving progress in health care, accessibility to medication, and the eradication of stigma. Ultimately paving the way for a more just and compassionate community. UHURU is a tribute to the strength shown by those living with Parkinson’s everyday, and an urgent plea for awareness, compassion, and change.