Private Project

Come Back When You're Sick

Daniel Barvin, was 28 when he found out he was a carrier for C9orf72, the gene that spelled doom. ALS and FTD had devastated his family, taking is grandfather, father and 4 relatives on his father's side.
This is the story of genetic ALS through the story of one man and his family, and his mission to change the world by driving people to question and test their own genetic status.

  • Cameron Kit
    Director
    Write Your Own Story, Shimla to Seattle, Chlorine, Body Prison, Negative Space
  • Cameron Kit
    Producer
  • Rosemary Maldonado
    Editor
  • Project Type:
    Short
  • Runtime:
    13 minutes 12 seconds
  • Film Color:
    Color
  • First-time Filmmaker:
    No
  • Student Project:
    No
  • Digital Cinema Package:
    Unavailable
Director Biography - Cameron Kit

Cameron is a filmmaker with over 16 years of experience in film and storytelling. She has directed over 40 films, including the feature documentary “African Woman’s Voice.” She is passionate about sharing the real lived experiences of people living with rare diseases like ALS, and believes storytelling can help raise awareness and change the world.

Add Director Biography
Director Statement

500,000 people in the US either carry or are at risk of carrying a mutation for ALS/FTD and 30,000 people have it right now. With Chris Hemsworth sharing his father's diagnosis publicly, the time is ripe to put genetic testing back in the public spotlight.
This is a deeply personal story about the cost of knowing and the heroism it takes to share the message - if you know your genetic status, you have the power to End the Legacy of ALS and FTD.