Maisy and the Making of Daisy

Maisy is a nine-year-old girl with the rare skin condition Recessive Dystrophic Epidermolysis Bullosa that will ultimately take her life. Despite having an active blog and singing to an audience of over 300 at charity shows, she has never been allowed to play the lead role in any of her school plays because of her incurable terminal condition and each year she dreams that this might be the year that they pick her but they never do. Nancy Paton came across this talented girl whilst working at Great Ormond Street Children's Hospital and she inspired her write and then film the award winning short film Daisy which allowed Maisy to finally become the actress she has always dreamt of being.

  • Nancy Paton
    Director
    Daisy, Postpartum
  • Nancy Paton
    Producer
    Daisy, Postpartum
  • Project Type:
    Documentary
  • Runtime:
    24 minutes 51 seconds
  • Completion Date:
    May 24, 2016
  • Production Budget:
    3,000 GBP
  • Country of Origin:
    United Kingdom
  • Country of Filming:
    United Kingdom
  • Language:
    English
  • Shooting Format:
    Digital
  • Aspect Ratio:
    16:9
  • Film Color:
    Color
  • First-time Filmmaker:
    No
  • Student Project:
    No
Director Biography - Nancy Paton

Nancy Paton is an Australian filmmaker residing in Saudi Arabia. Soon after finishing the award winning short film Daisy which she wrote, produced and directed, she starred in the award winning short film Postpartum which she also wrote, produced and directed. She has just completed the short film Choke for the 48 Film Project, two music videos and two documentaries; Maisy and the Making of Daisy and The Black Abaya. She is in-development on two feature films Touched and In Her Shoes.

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Director Statement

EB is a genetic condition where the skin breaks at the slightest touch, causing excruciating pain, open blisters and wounds. EB is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK. EB can mean a life of extreme pain and disability. At its worst, EB can cause infant fatalities. Even if EB sufferers do grow past infancy, they are likely to contract a fatal skin cancer and die in their teens.

Whilst working at Great Ormond Street Children's Hospital I came across a young inspirational girl called Maisy with this rare skin condition. She was only 4 when I first met her but for someone living with a terminable incurable condition, that causes excruciating pain everyday, she had a spirit so strong and powerful I knew that she had the power to change people’s perceptions.

I made the documentary to help raise awareness for EB but also to encourage the film industry to offer more opportunities in the future for children and adults with disabilities and diseases.