Fraser Syndrome & Me

Filmmaker Kyle Anne Grendys, is only the 75th person to be born
with the rare, recessive gene disorder called Fraser Syndrome.
Having always felt alone in the world, she sets out on a journey to find her community and finally meets others just like her.

  • Kyle Anne Grendys
  • Patty Walters
  • Kyle Anne Grendys
  • Rachel Walters
  • Richard Wilkerson
    Assisted Editor
  • Josh Mallett
    Assisted Editor
  • Maggie Rosario
    Assisted Editor
  • Film Type:
    Documentary, Student
  • Runtime:
    19 minutes 43 seconds
  • Completion Date:
    May 10, 2018
  • Production Budget:
    10,000 USD
  • Country of Origin:
    United States
  • Shooting Format:
  • Film Color:
  • First-time Filmmaker:
  • Student Project:
  • Sedona International Film Festival
    Sedona, Arizona
    United States
    February 26, 2019
    North America Premiere
    Audience Choice: Best Student Short Film
  • Wildwood Film Festival
    Appleton WI
    United States
    March 23, 2019
    Wisconsin Premiere
    Best Documentary & Audience Choice
  • Changing Faces International Film Fest

    Monthly Winner of Best Short Documentary
  • Shawnee Shorts Midwestern Film Festival
    Murphysboro, Illinois
    United States
    June 1, 2019
  • Georgia Documentary Film Festival
    Atlanta, Georgia
    United States
    June 1, 2019
    Atlanta Premiere
  • Kadoma International Film Festival
    Kadoma, Osaka
    July 28, 2019
    Japan Premiere
    Mayors Award
  • Salute Your Shorts
    Los Angeles
    United States
    August 16, 2019
    LA Premiere
    Runner Up - Best Documentary
  • Vail Films Festiva
    Vail, Colorado
    United States
    August 17, 2019
    Colorado Premiere
    Official Selection
Director Biography

My name is Kyle Anne Grendys. I am many things, a little sister, a world traveler, dog mom, musical fanatic, a recent graduate from the University of Wisconsin - Milwaukee’s film program, oh … and I have a disability. I was born with an incredibly rare genetic disorder called Fraser Syndrome. The day I was born doctors told my parents I wouldn’t survive the night. 26 years later I am still proving them wrong. I like to say that I see the world through a view you can’t get from two eyes. I have seen the very worst the world has to offer but without seeing the bad you would never recognize the good. I dedicate my life to making films about everything good.

Add Director Biography
Director Statement

From the moment I could hold a camera, I knew I would grow up to make this film. Making “Fraser Syndrome & Me” gave me the opportunity to give to others what I needed growing up. I needed to know that I wasn’t as alone as I felt. My family needed to know that there were others out there going through the same journey. That yes, it is going to be a long and sometimes difficult road, but there is hope. After all of my traveling, I can honestly say that the individuals I met who have Fraser Syndrome are some of the best people. Everyone would enjoy hearing their stories and have the pleasure of knowing them. It is clear that these individuals have experienced a lot of hardships but they choose to be loving and kind. Parents that have endured these hardships continue to fight and believe in their child when the world does not. I started this journey feeling utterly alone. But now, I can’t believe how lucky I am to be a part of this beautiful family.