Private Project

The Hope Scenarios: Focusing the Lens on Rare Diseases (Season 1)

The Hope Scenarios: Focusing the Lens on Rare Diseases is a documentary web-series which follows the lives of two young women with rare diseases. The first season follows Epiphany, an actress/director who has sickle cell disease. The second follows Sam, who has familial dysautonomia (FD), and is an advocate for others with FD.

Each episode offers a glimpse into the lives of these two young women, and explores the challenges facing them, and the over 25 million other people living with rare diseases.

  • Louise Tiranoff
  • Lynne McVeigh
  • Project Type:
    Documentary, Web / New Media
  • Runtime:
    26 minutes 25 seconds
  • Completion Date:
    September 30, 2021
  • Country of Origin:
    United States
  • Country of Filming:
    United States
  • Language:
  • Shooting Format:
  • Aspect Ratio:
  • Film Color:
  • First-time Filmmaker:
  • Student Project:
Director Biography - Louise Tiranoff

Louise Tiranoff is a documentary filmmaker with more than 25 years experience. Louise served as producer, cinematographer and principal investigator for the Angelman Project (Phase I and II) a video database on Angelman syndrome, and Autism Spectrum Disorders Risk Alert (Phase I and II) both projects funded by the National Institutes of Health (Institute of Neurological Diseases and Stroke). Under her direction, GeneticaLens developed The SEE system (Symptoms-Surveillance Education and Enhancements), including the website Well Child Lens, that will enable pediatric practitioners and parents to quickly identify the risk alerts of autism.

Louise’s television credits include documentary segments and series, which she photographed and directed including 30 episodes of A Woman Is… a documentary series for NBC/WRC-TV, Washington, D.C. Her film Artists of the Dance won a Cine Golden Eagle and aired on the Arts and Entertainment network (A&E). She was Director of Photography of a two-part documentary special, Investigative Reports: Execution at Midnight produced for A&E. She was nominated for an Emmy for City Kid/Country Kid produced for WCBS-TV in New York. Louise is the founder/co-director of The Fearless Theater Company and has written and directed plays for The Celebration Series performed at Lincoln Center in New York featuring such artists as Benny Golson, Gregory Hines, Wynton Marsalis, Antonia Franceschi of the New York City Ballet, and Itzhak Perlman.

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