Sigurður Hólmar Jóhannesson is an Icelandic producer, advocate, and entrepreneur known for his impactful work in raising awareness for rare diseases and disabilities. He produced the documentary Human Timebombs (2015), a pivotal piece used in university curriculums worldwide to highlight the challenges faced by individuals with Alternating Hemiplegia of Childhood (AHC).
Sigurður's storytelling extends to Einstakt Ferðalag, a heartfelt document exploring unique journeys of families navigating rare conditions, and the podcast Spjallið með Góðvild, which fosters conversations around community, support, and innovation for families of children with special needs.
Beyond production, Sigurður is deeply involved in advocacy, having founded AHC organizations on both national and international levels, and worked to bridge communities globally. His initiatives often merge storytelling, education, and groundbreaking research, making him a champion for visibility and understanding in underserved areas.