SCLERODERMA WILL NOT TAKE MY SMILE

SCLERODERMA WILL NOT TAKE MY SMILE
“Scleroderma will not take my smile” is the communication campaign created by FESCA the Federation of European Scleroderma Associations Aisbl for the World Scleroderma Day 2019. The communication campaign is composed by several communication tools and actions but the video represents the core of the communication strategy.
Link at the video:
https://www.youtube.com/watch?v=-4kIsfvWxz4&t=18s
Categoria:
CORTO/SPOT di Sensibilizzazione in collaborazione con FERPI
FESCA is represented in Italy by the following Associations:
APMARR - Associazione Nazionale Persone con Malattie Reumatologiche e Rare
GILS – Gruppo Italiano Lotta alla Sclerodermia
AILS - Associazione Italiana Lotta alla Sclerodermia
ASSMAF – Associazione per lo studio della Sclerosi Sistemica e delle malattie fibrosanti
SYNOPSIS:
Mary still remembers her skin getting harder, her hands becoming blue, her first rheumatic pains. She discovered she had a rare, chronic and potentially fatal auto immune disease called Scleroderma. But she is not alone and with the help of the Scleroderma community all around the world she will not fight back alone.
Scleroderma is a rare, autoimmune chronic disease in which an early diagnosis can make the difference. It damages the skin and also vital organs such as lungs, heart, and kidneys. The quality of life is threatened by this severe illness that it often makes it difficult to do simple and fundamental actions like breathing, eating and even smiling.
World Scleroderma Day is celebrated every year on June 29. For 2019 FESCA decided to focus the campaign on young people to spread the awareness about the matter that Scleroderma can affect at any age. Even if 35-50 women are the more affected, it’s a matter of fact that the more we have early diagnosis the higher the number of young people and also children with this disease.
When even everyday gestures become tough, it’s easy to feel alone and depressed. For this reason we chose to represent in the World Scleroderma Day new video the importance to keep smiling and join the community of scleroderma people that is locally represented by 25 association in 19 countries.
The message of the new video, translated into 15 languages and shot in the beautiful location of the ancient university of Milan by director Alessandro Sigismondi, is clear and direct: people with scleroderma are not alone.