Rare is Real

A real-life story of one young woman's experience of genetic haemochromatosis - "It may be rare, but it's real to me"

Genetic haemochromatosis is the UK’s most common inherited genetic condition, directly affecting over 380,000 people. Although it is commonplace, the condition is significantly under-diagnosed in the UK. Untreated, the condition can lead to iron overload, where the body is unable to process excess iron.

Excess iron is extremely toxic. Genetic haemochromatosis can cause liver disease, cancer, heart disease, chronic fatigue, diabetes, severe joint pain, sexual health issues and neurological issues.

Early diagnosis saves lives.